Epilepsy

Patient curated information about

Epilepsy

Learn more about your condition from other patients like you.

View answers to all the questions submitted by our community, rank the unrated questions to determine their usefulness and submit questions that you want the answers to.

Find out the preferred blogs, support groups, organisations and more in our top five lists.

Your Questions

If Medical Marijuana shops were licensed and completely legal in your region, would you use that service?

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Top 5s

Websites / Forums / Blogs Apps Activities / Alternative Medicines Diet / Vitamins / Supplements Books

Websites / Forums / Blogs

1

Patient.co.uk
Patient.co.uk includes forums for asthma patients, lists patient support groups and disease information plus a blog on asthma by Dr Sarah Jarvis
2

Patients Like Me
A patient community to share personal stories and health data for good.
3

Coping with Epilepsy
CWE aims to provide a forum for people living with epilepsy (both people with epilepsy and those who live with or care for people with epilepsy) to discuss epilepsy, seizures, medications, treatments and all aspects of living with and coping with the disorder.
4

Epilepsy Action
Epilepsy Action is the UK’s leading epilepsy organisation and exists to improve the lives of everyone affected by the condition. As a member-led association, we are led by and represent people with epilepsy, their friends, families and healthcare professionals.
5

Epilepsy Advocate
Epilepsy Advocate is a community of Advocates and caregivers that lets you connect with those who share the same goal of achieving additional seizure control. New personal stories, features, and events are added all the time.

Apps

1

EpDetect
EpDetect will monitor the movement of the person while the phone is in their pocket or worn on a belt. The software will differentiate the movements associated with epilepsy from normal movement and send an SMS text message to a caregiver.
2

Epilepsy Action seizure Diary
The free Epilepsy Action Seizure Diary app helps you record your seizures, manage your medicines and keep track of your epilepsy.
3

Epilepsy App
It can help users to organize their daily lifes. It provides with functionality of setting reminder for taking medicines, registering different types of seizures, taken medicines, moods etc.
4

Epilepsy Society
Epilepsy Society’s free epilepsy app is a new and interactive way to help manage your epilepsy. Key features include: My Medication, My Reminders, First Aid instructions and a step by step reovery guide.
5

My Epilepsy Diary
Lets you record real-time details about seizures, medications, side effects, moods, triggers, and you can even include detailed notes. When your entry is completed, it is synched to your online diary where you can generate personalized reports to bring to medical visits, providing your doctors and nurses with not only snapshots of recent events, but also long-term trend data, both key to assessing treatment effectiveness.

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