We were started by a Multiple Sclerosis patient, so we understand how important your Personal Data is and that it’s our responsibility to protect it.
We conduct market research with Patients, Carers and HCPs across the world to allow them to get their opinions heard by the healthcare industry, earn money and raise money for charity. Patients, Carers and HCPs can register with us, so we can notify you about surveys and research activities we’re conducting to see if you’d like to take part. Charities and support organisations can also register with us to receive donations from our users and to refer other users to the community. Other users can register with us in order to refer other users or support organisations.
This Privacy Notice describes how Liberating Research Ltd (“company”, “us”, “we”) protects and makes use of the information you provide when you use this Site or interact with us, how you can control the Personal Data we hold about you and information about third parties with whom your Personal Data may be shared.
If you have any questions about this policy, please get in touch, we’d be happy to answer any questions you may have.
You can also read more about what you agree to when using this Site within our Terms and Conditions.
This Notice may be updated from time to time. The latest version is published on this page and we recommend that you check back regularly to keep updated on any changes. If you are registered user of this site, you will receive notifications of updates to this Privacy Notice when you log into your account or via email.
This Privacy Notice was last updated on: 24/05/2018
What Data We Collect
From Registered Users
We gather information from you during registration and through changes you make in your online account, in order to contact you about surveys and other research activities that may be relevant to you. You choose which studies you want to take part in and when. You are under no obligation to take part in any studies we offer and can opt out or close your account at any time.
We collect the following information:
From All Site Users
We collect and store on an anonymous basis Site usage data in order to better understand how visitors use this Site and to present timely, relevant information to them. This includes the pages visited and for how long and other similar information. Please see the Cookies and How We Use Them section below for more information.
From Users Taking Part in Surveys or Research Activities
When we notify you about a relevant study, we will provide details of the study and what is involved, the amount you will be paid, the purpose of the study and, where possible, who it is being conducted by. You can then decide if you would like to participate if you are eligible to do so.
In many cases the research will be anonymous (such as most online surveys) however if additional Personal Data is being provided as part of the study (such as a telephone or face to face interview) and it is being shared with third parties not specified in this Privacy Notice then we will ask you to separately consent to that specific use before taking part in the study. This ensures you are in control of your data at all times and you decide what information to share and what to retain. You are under no obligation to take part in any studies at any time.
How We Use This Data
Collecting this data allows us to offer you surveys and research activities that are relevant to you and to pay you for taking part or, in the case of charities and support organisations, to allow our users to select you for their donation and to send the associated donations to your organisation.
Specifically, we may use this data:
We shall not process your Personal Data in a way that is incompatible with the purposes for which it has been collected or subsequently authorised by you. To that end, we will take reasonable steps to ensure that Personal Data is reliable for its intended use, accurate, complete, and current. Liberating Research Ltd uses reasonable efforts to maintain the accuracy and integrity of Personal Data and to update it as appropriate.
Our lawful bases for the processing of your Personal Data are: 1) your consent and/or 2) any other applicable legal bases, such as our legitimate interest in offering surveys, research activities and referral capabilities to Patients, Carers and others.
Your Notification Preferences
By registering for an account with the Liberating Research community, you agree to be notified by email or phone about upcoming surveys or research activities that may be relevant to you or the users you know, support or treat, based on the information you have provided.
You can change your notification preferences at any time on your Notifications page (although if you are interested in participating in market research with us, we strongly recommend you allow us to email/phone you about new studies otherwise we won’t be able to notify you about all studies and you may not be able to participate). You can access your Notifications page either by logging into your online account or by clicking the Unsubscribe link at the bottom of any of the automated emails we have sent you.
Your Payment Information
By completing surveys or taking part in research activities with us (or by registering as a charity or support organisation), you will earn incentives or donations as noted in the ‘Payments and Donations’ section of our Terms and Conditions.
You can choose to be paid via Amazon voucher, bank transfer or to donate your entire incentive to one of our registered charities (the available payment options may vary depending on your location or if dictated by our client for a specific project). In the case of charities and support organisations you will be paid by bank transfer (or in occasional circumstances via direct card payment on your website).
Depending on the payment method/reward chosen by you, your contact and, if relevant, bank details or other payment information may be transferred to one or more of the following reward fulfilment partners (or their subsidiaries) to enable them to perform the payment on behalf of Liberating Research. Your data is protected by these companies in line with their Privacy Notices (which are linked to below). Please note these third parties may be based outside of your home country.
Reward Fulfilment Companies
Amazon Inc (www.amazon.com/privacy)
PayPal (Europe) S.à r.l. et Cie, S.C.A.(www.paypal.com/uk/webapps/mpp/ua/privacy-full)
Metro Bank PLC (www.metrobankonline.co.uk/privacy)
TransferWise Ltd (www.transferwise.com/privacy-policy)
We may update this list in the future in order to offer alternative or additional payment methods or to replace existing providers with more effective ones. If this occurs, it will be updated in this Privacy Notice and you will be notified within your account the next time you login.
Other Uses of your Data
We may disclose your Personal Data for other purposes or to other third parties when you have consented to or requested such disclosure or under the following circumstances:
Please be aware that in rare situations, it may be necessary disclose Personal Data in response to lawful requests by public authorities, including to meet national security or law enforcement requirements.
Where We Store Your Data
Your data may be stored / processed on servers in the EU, UK, and occasionally in the United States or other countries, that are operated or managed by third party companies in the course of doing business. At all times the data will be encrypted or otherwise suitably protected whether in transit or at rest.
These companies / servers are exclusively used by us for data storage / email hosting / accountancy and other internal business processes and your Personal Data is never shared with these companies for the purposes of promotion or advertising. For example we use Microsoft Corporation to host and run our Email system (using European servers) and we use Egnyte Inc’s servers in Europe to host most of our files. Your data is protected by these companies in line with their Privacy Notices. Please note these third parties may be based outside of your home country.
Where your data is stored outside the EEA we only transfer it to countries that have been identified as providing adequate protection for EEA data, to third parties who are certified under the EU-US Privacy Shield or to third parties who have approved transfer mechanisms in place to protect your personal data (eg by entering into the European Commission’s Standard Contractual Clauses) in order to ensure they comply with GDPR and other relevant data protection regulations.
How Long We Store Your Data
We retain the Personal Data of registered users within our system for as long as you are registered with us. To see the data retention policies for any Personal Data you have submitted as part of a survey or research activity please check the consent form you agreed to for the specific study or get in touch with us for more information.
You are entitled to view, amend, or delete the Personal Data that we hold. If you are a registered member then you can login to your online account at any time and access or update your information, remove your account or change your notification preferences.
You can opt-out of Liberating Research notifications at any time or close your account from within the Members’ area. If you choose to close your account then all of your Personal Data will be permanently deleted from our system except where we have a legal obligation to retain it or if it has been submitted under a separate consent agreement for a particular study. If there are any outstanding payments associated with the account then your banking or other relevant payment details will be retained until the outstanding payments have been made. Please note that you may continue to receive some previously prepared survey invitations/notifications for a few days following the termination of your account.
If you close your account, the answers to any surveys, research activities, Condition Q&A questions/answers or any other information you have submitted to Liberating Research Ltd in any form may be retained in anonymous form with no associated Personal Data attached to these records or for the timeframes defined by consent agreement for that study. If you would like to withdraw consent, restrict processing or request deletion of this information as part of the closure of your account, please alert us to this fact when submit your request to close your account.
Any Personal Data that you have provided as part of a survey or research activity will be protected and stored under the terms of the consent agreement for that study. Please refer to the related consent agreement or get in touch if you would like further information about Personal Data you have submitted as part of any specific studies or would like to withdraw your consent for the processing of your Personal Data for a specific survey or research activity.
If we have sent payments to you for taking part in surveys or research activities, or for any other reason, then your name, address and payment details will be retained for 6 years for tax and legal purposes, following the deletion of your data.
You can email any related requests to our Privacy Team at firstname.lastname@example.org and we will get back to you upon receipt of your outreach.
Access, Rectification and Erasure.
You have the right to obtain confirmation about whether and what Personal Data is included about you in our databases. Upon request, we will provide you with access to all your Personal Data held by us within the time frame dictated by the applicable data protection regulations.
We will permit you to know what Personal Data about you is included in our databases and to ensure that such Personal Data is accurate and relevant for the purposes for which we collected the Personal Data.
You may review your Personal Data stored in our databases and correct, update, modify, or delete any data that is incorrect or incomplete.
Your right to access your Personal Data may be restricted in exceptional circumstances, including, but not limited to, when the burden or expense of providing this access would be disproportionate to the risks to your privacy in the case in question, or where the rights of persons other than you would be violated by the provision of such access. If we determine that your access should be restricted in a particular instance, we will provide you with an explanation of our determination and respond to any enquiries you may have.
You may access your Personal Data by contacting us by phone, post or email at the contact information below. In making modifications to your Personal Data, you must provide only truthful, complete, and accurate information.
Liberating Research Privacy Team
Unit 7/8 (1st Floor) Warwick Works
London E5 8QJ UK
+44 (0) 207 249 4461
You may object, at any time, to your Personal Data being processed for a specific purpose.
Restriction of Processing
You may restrict processing of your Personal Data for certain reasons, such as, for example if you consider your Personal Data collected by us to be inaccurate or you have objected to the processing and the existence of legitimate grounds for processing is still under consideration.
You may request the Personal Data you provided to us in a commonly used and machine-readable form.
Right to Withdraw Consent
You have the right to withdraw your consent at any time, without affecting the lawfulness of our processing based on such consent before it was withdrawn, including processing related to existing contracts for our Services.
Requests for Personal Data
We will track each of the following and will provide notice to the appropriate parties under law and contract when either of the following circumstances arise: (a) legally binding request for disclosure of the Personal Data by a law enforcement authority unless prohibited by law or regulation; or (b) requests received from the Data Subject.
What is a cookie?
A cookie is a small file placed on your computer's hard drive. It enables our website to identify your computer as you view different pages on our website.
Cookies allow websites and applications to store your preferences in order to present content, options or functions that are specific to you. They also enable us to see information like how many people use the website and what pages they tend to visit.
Cookies do not provide us with access to your computer or any information about you, other than that which you choose to share with us.
However, please note that doing this may affect how our website functions. Some pages and services may become unavailable to you.
To learn more about cookies and how they are used, visit All About Cookies.
We have implemented physical and technical safeguards to protect your Personal Data from loss, misuse, and unauthorised access, disclosure, alternation, or destruction. For example, electronically stored Personal Data is stored on a secure network with firewall protection, and access to our electronic information systems requires user authentication via password or similar means.
We also employ access restrictions, limiting the scope of employees who have access to Personal Data. Our personnel may access and use Personal Data only if they are authorised to do so and only for the purpose for which they are authorised.
Further, we use secure encryption technology to protect certain categories of Personal Data.
Despite these precautions, no data security safeguards guarantee 100% security all of the time.
Questions or Complaints?
You may contact us with questions, concerns, or complaints concerning our privacy practices or this Privacy Notice at the following contact points:
Liberating Research Privacy Team
Unit 7/8 (1st Floor) Warwick Works
London E5 8QJ UK
+44 (0) 207 249 4461
This website is owned and operated by Liberating Research Ltd (“company”, “us”, “we”) which is the Data Controller in relation to information supplied via the website; a company registered in England and Wales with company number 09761045. The registered offices are located at 20-22 Wenlock Rd, London, N1 7GU, United Kingdom. Liberating Research Ltd is registered with the Information Commissioners Office (ICO) with registration number ZA142323 and are members of Intellus Worldwide and The British Healthcare Business Intelligence Association. Please note this website contains public sector information licensed under the Open Government Licence v2.0 (including data from the Organisation Data Service, Health and Social Care Information Centre, licenced under the Open Government Licence v2.0).
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