As patients we understand how important your personal data is. Everything we share is completely anonymised and you choose what information to enter and what surveys to complete. That way you always retain full control over what information you share and what you don't.
This website is owned and operated by Liberating Research Ltd; a company registered in England and Wales with company number 09761045. The registered offices are located at 20-22 Wenlock Rd, London, N1 7GU, United Kingdom. Liberating Research Ltd is registered with the Information Commissioners Office (ICO) with registration number ZA142323. Please note this website contains public sector information licensed under the Open Government Licence v2.0 (including data from the Organisation Data Service, Health and Social Care Information Centre, licenced under the Open Government Licence v2.0).
Liberating Research (www.Liberatingresearch.com) is a research and sharing platform where Patients and Healthcare Professionals (HCP’s) can opt in to participate in market research surveys & outcomes based / Non-Interventional research, and also share information and provide opinions relating to health conditions, lifestyle and treatments.
This policy is updated from time to time. The latest version is published on this page so please check back regularly to keep updated on any changes.
If you have any questions about this policy, please get in touch via email or phone
We gather and use certain information about individuals in order to provide products and services, offer surveys and research activities, allow users to ask and answer questions and provide recommendations and to enable certain functions on this website.
We also collect information to better understand how visitors use this website and to present timely, relevant information to them.
What data we gather
We may collect the following information:
How we use this data
Collecting this data helps us understand what you are looking for from the company and enables us to offer you surveys and research activities that relate to you.
Specifically, we may use data:
Controlling information about you
Via our website you can opt-in to receive marketing communications from us by email, telephone, text message or post.
If you have agreed that we can use your information for marketing purposes, you can change your mind easily by signing into our website and changing your opt-in settings.
Any data you submit via the website or as part of a survey/research activity linked from our website that is shared with third parties will only be provided in non-attributable form that is not personally identifiable so that no third parties can use this data to identify or contact you (unless you provide your express content for this data to be shared).
You grant Liberating Research Ltd a non-exclusive, worldwide, perpetual and irrevocable right to use, distribute, reproduce, publish, translate, sell and create works from and display any non-personally identifiable data you have submitted to Liberating Research Ltd in any form and / or to incorporate it in other works in any form, media or technology.
We will never lease, distribute or sell your personally identifiable information to third parties unless we have your express permission or the law requires us to.
Members can opt out of Liberating Research at any time and close their account from within the members’ area. In the event your account is terminated for any reason then all of your personal information will be permanently deleted from our system including your payment and donation history. If there are any outstanding payments or donations associated with the account then these will also be cancelled. The answers to any surveys, research activities, Condition Q&A questions/answers or any other information you have submitted to Liberating Research Ltd in any form may be retained in anonymous form with no personally identifiable information.
Any personal information we hold about you is stored and processed under our data protection policy, in line with the Data Protection Act 1998.
If you are invited to participate in research that isn’t one of our standard Market Research studies; eg a Non Interventional Study (NIS) where the study is designed for scientific purposes, you may be asked to provide separate consent to participate in that specific research study. This is relevant if the research is due to be published in an official medical journal or requires Ethic Committee or Independent Review Board approval. We will always notify you of this before you agree to participate. Please note: Non-interventional studies on drugs in current therapeutic practice are based on a large number of patients and provide indispensable scientific insights into the acceptance and practicability of a medicine, on possible interactions with other drugs, previously-unknown, very rarely occurring side effects and possible new findings on efficacy. Typical questions addressed by NIS include the quality of patients’ life and the cost structure of the therapy under real life conditions.
Cookies and how we use them
What is a cookie?
A cookie is a small file placed on your computer's hard drive. It enables our website to identify your computer as you view different pages on our website.
Cookies allow websites and applications to store your preferences in order to present content, options or functions that are specific to you. They also enable us to see information like how many people use the website and what pages they tend to visit.
Cookies do not provide us with access to your computer or any information about you, other than that which you choose to share with us.
However, please note that doing this may affect how our website functions. Some pages and services may become unavailable to you.
To learn more about cookies and how they are used, visit All About Cookies.
We will always hold your information securely. To prevent unauthorised disclosure or access to your information, we make use of strong physical and electronic security safeguards. We also follow stringent procedures to ensure we work with all personal data in line with the Data Protection Act 1998.
Please see the Disclaimers and Liability section of our Terms and Conditions for more information about the storage of your data
Links from our site
The Website may contain links or references to external websites or resources which are owned, controlled or hosted by third parties. Any such linking or reference does not constitute an endorsement of, claim to ownership over or assumption of responsibility for any of the content of these external websites or resources by the Website or the owners of the Website. We accept no liability over the use of any external website or resource linked to from our website.
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