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Patient curated information about

Haemophilia

Learn more about your condition from other patients like you.

View answers to all the questions submitted by our community, rank the unrated questions to determine their usefulness and submit questions that you want the answers to.

Find out the preferred blogs, support groups, organisations and more in our top five lists.

Your Questions

Imagine a world without the internet, do you think you would be as knowledgeable about your condition if you only relied solely on the advice offered by your Physicians and treatment teams?

Please select one answer

Yes, I think I would be as knowledgeable as I am today.
%
Yes, I think there is too much information on the internet that is misleading about my condition. I would always rely on my care team and physician to make these decisions.
%
No I do not think I would be as knowledgeable, but I trust my care team regardless.
%
No. I would not be comfortable if all decisions were made by my treatment team and I didn’t have any understanding of my options.
%
I’m not sure.
%
Next Question

How useful do you find this question?

Average Rating 6.5

Top 5s

Websites / Forums / Blogs
  • 1
    Patient.co.uk

    Patient.co.uk includes forums for asthma patients, lists patient support groups and disease information plus a blog on asthma by Dr Sarah Jarvis

  • 2
    Blood Brotherhood

    Blood Brotherhood is a national (US) program for adult men, diagnosed and living with bleeding disorders.  It is designed to be a multi-avenue outreach, to provide education and support, promote good health, and establish a sense of community for adult men.

  • 3
    Haemnet

    Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.

  • 4
    Haemophilia Care Parent blog

    Written by parents for parents caring for a Haemophilia child

  • 5
    Haemophilia Health

    myFusionZone is a patient support program that provides information about treatment and a healthy lifestyle for Australians prescribed a Pfizer haemophilia product.

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